Abstract Preview
Abstract
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Title Health literacy actions – perspectives from people living with inflammatory bowel disease (IBD)/carers and health professionals |
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Type Oral Presentation Only |
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Theme Global Health Literacy Summit 2021 |
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Topic Health literacy and health equity |
Authors
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Main Author Melanie Hawkins1 |
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Presenting Author Melanie Hawkins1 |
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Co-Author Christina Cheng1 Sanne Elbrink1 Hailey Fisher Wayne Massuger Leanne Raven Richard H Osborne1 |
Authors' Institution
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Department / Institution / Country School of Health Sciences / Swinburne University of Technology / Australia1 |
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Abstract Content (abstracts should be written in Size 11 font, Arial font style) Background Measurement with the Health Literacy Questionnaire (HLQ) enables development of health literacy profiles. The profiles are presented in workshops as vignettes (fictional but evidence-based stories) to facilitate discussions about actions to support people’s strengths or address challenges to accessing, understanding, appraising, remembering and using health information and resources. This study examined differences between health literacy actions offered by people with inflammatory bowel disease (IBD)/carers and actions suggested by health professionals. The aim was to understand different perspectives and expectations for patient care, treatment, and support to manage IBD. This project used the Ophelia (Optimising Health Literacy and Access) community co-design process. Methods Four workshops with health professionals and five with people with IBD/carers were undertaken in March and April 2021. Eight vignettes reflecting diverse health literacy situations across Australia were presented at the workshops. The discussion about each vignette was guided by four questions: Do you know people like this? What problems is this person dealing with? What can be done to help this person? What can organisations and community groups do to help many people like this? Ideas were thematically analysed according to activities or strategies for individuals, families, practitioners, and organisations and communities, as well as by activities or strategies identified by health professionals and identified by people with lived experience of IBD. Results The workshops were highly engaging and elicited >60 health-literacy-informed actions. People with IBD/carers referred more to the need for support groups and practical resources from IBD consumer organisations. Health professionals referred more to the need to give patients better, more, or different information; to increase the use of telehealth; and to increase support from medical professionals and psychologists. Both groups reported the need for multidisciplinary healthcare teams. Conclusions The perspectives and expectations of people with IBD and health professionals were captured by separate workshops and elicited insightful ideas. The involvement of people with IBD and health professionals identified that these groups generated different ideas for how to improve IBD information and resources. The study demonstrates the importance of patient voice in identifying solutions to health literacy challenges. |
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Other Topics Preferences(Maximum of two topics only and please note that the Program Committee reserves the right to decide on the final presentation format.) Poster Health literacy and NCDs |
Requires Audio or Video system for Presentation?: No
